Who do you people think you are fucking with?
The local oncologist is starting to peeve me. I think it's a little blowback because I am such a difficult patient. It's been manifesting itself in small ways. Believe me, I have no problem admitting I am difficult.
What can I say buddy..........sucks to be you.
As some of you may know I stopped taking everything January 22nd. I am seriously worried about the side effects from the Revlimid and the dexamethasone. I have been very upfront about needing more answers before I consider going back on chemo.
Peripheral neuropathy is a serious diagnosis. Maybe I have it. Maybe I don't. Maybe it's reversible. Maybe it's not. I need to know before I let you give me Velcade.
So I've been waiting to see how it goes. Will the numbness and tingling subside? Well, now it's painful. Like getting jabbed with a hypodermic needle or zapped with electricity.
So I pick a neurologist, local guy, I call for an appointment. I get March 12th, but thanks to being "Maggie from X-company" I also get the top spot on the cancellation list. I also get some helpful advice - get some MRIs ahead of time.
I call the local onc. I explain what I want. I can't imagine there will be a problem.....after all, the sooner these questions on peripheral neuropathy get settled, the sooner I am open to continuing treatment.
His nurse calls, he won't order them. No explanation. Just no.
I fax my PCP. She calls me a few hours later. She's happy to help, can I come in? They can fit me in this week.
Today I call the local onc. Normally my blood work is followed by an appointment and I get the blood work results handed to me. Now that I am not treating and only being watched, there will be four days (every other Wednesday) of blood work with no face to face. I keep track of all the results on the Myeloma Manager.
The nurse calls and says "No". She tries to explain that she can't just fax them to any random number - mind you, my PCP and the specialist, Dr. Miller, they fax me at random numbers. The nurse further explains that I need to sign a release and no she can't fax em the release, I have to come down in person.
Well, you know I was doing 75 miles and hour down Route 3 toward the Jordan. Then, just shy of the hospital, I thought - why am I going to make myself crazy? These test results are at the drawing station too.
So I pop into the drawing station.....where I just was Wednesday with cookies....and they print out my stuff.
I don need no steenkin' release!
4 years ago