Friday, February 13, 2009

Next - Let Me Say

Who do you people think you are fucking with?


The local oncologist is starting to peeve me. I think it's a little blowback because I am such a difficult patient. It's been manifesting itself in small ways. Believe me, I have no problem admitting I am difficult.

What can I say to be you.

As some of you may know I stopped taking everything January 22nd. I am seriously worried about the side effects from the Revlimid and the dexamethasone. I have been very upfront about needing more answers before I consider going back on chemo.

Peripheral neuropathy is a serious diagnosis. Maybe I have it. Maybe I don't. Maybe it's reversible. Maybe it's not. I need to know before I let you give me Velcade.

So I've been waiting to see how it goes. Will the numbness and tingling subside? Well, now it's painful. Like getting jabbed with a hypodermic needle or zapped with electricity.

So I pick a neurologist, local guy, I call for an appointment. I get March 12th, but thanks to being "Maggie from X-company" I also get the top spot on the cancellation list. I also get some helpful advice - get some MRIs ahead of time.

I call the local onc. I explain what I want. I can't imagine there will be a problem.....after all, the sooner these questions on peripheral neuropathy get settled, the sooner I am open to continuing treatment.



His nurse calls, he won't order them. No explanation. Just no.

I fax my PCP. She calls me a few hours later. She's happy to help, can I come in? They can fit me in this week.

Today I call the local onc. Normally my blood work is followed by an appointment and I get the blood work results handed to me. Now that I am not treating and only being watched, there will be four days (every other Wednesday) of blood work with no face to face. I keep track of all the results on the Myeloma Manager.

The nurse calls and says "No". She tries to explain that she can't just fax them to any random number - mind you, my PCP and the specialist, Dr. Miller, they fax me at random numbers. The nurse further explains that I need to sign a release and no she can't fax em the release, I have to come down in person.

Well, you know I was doing 75 miles and hour down Route 3 toward the Jordan. Then, just shy of the hospital, I thought - why am I going to make myself crazy? These test results are at the drawing station too.

So I pop into the drawing station.....where I just was Wednesday with cookies....and they print out my stuff.

I don need no steenkin' release!


Stella by Starlight said...

The Mayo Clinic (lots to read) recommends B12.

BostonMaggie said...

My sister Jen is having similar problems (she has MS and was also on steroids). She says if it's B12 she will kill herself laughing.

Stella by Starlight said...

Jen please don't kill yourself over the B12, but it's great if you're laughing.

Damn steroids...

Anonymous said...

Maggie, I just added your "driving" to my prayers. :)